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Table of Contents

Introduction: Patients as Policy Actors

Part I Voices of the Silent

Chapter 1 Solitary Advocates: The Severely Brain Injured
and Their Surrogates

Chapter 2 Physician-Patient Communication in the Care of
Vulnerable Populations: The Patient's Voice in
Interpersonal Policy

Chapter 3 Is It Time to Push Yet? The Challenges to Advocacy in
U.S. Childbirth

Chapter 4 A Pound of Flesh: Patient Legal Action for Human
Research Protections in the Biotech Age

Part II From Individual to Collective

Chapter 5 From Outsiders to Insiders: The Consumer-Survivor
Movement and Its Impact on U.S. Mental Health Policy

Chapter 6 "Don't Scream Alone": The Health Care Activism of
Poor Americans in the 1970s

Chapter 7 The Canary in Gemeinschaft: Using the Public Voice of
Patients to Enhance Health System Performance

Chapter 8 Patient Appeals as Policy Disputes: Individual and
Collective Action in Managed Care

Part III How Patients Matter

Chapter 9 The Power of Us: A New Approach to Advocacy
for Rare Cancers

Chapter 10 Patients and the Rise of the Nurse-Practitioner Profession

Chapter 11 A House on Fire: Newborn Screening, Parents'
Advocacy, and the Discourse of Urgency

Chapter 12 Measuring Success: Scientific, Institutional, and
Cultural Effects of Patient Advocacy

Epilogue: Principles for Engaging Patients in U.S. Health
Care and Policy

Contributors

Nancy Tomes, Beatrix Hoffman, Joseph J. Fins, Jennifer Hersh, M. Robin DiMatteo, Kelly B. Haskard-Zolnierek, Summer L. Williams, Desiree Despues, Elizabeth Mitchell Armstrong, Eugene Declercq, Lori Andrews, Julie Burger Chronis, Mark Schlesinger, Marc A. Rodwin, Amy Dockser Marcus, Julie Fairman, Rachel Grob, Steven Epstein





Patients as Policy Actors
Bookstore | Seasonal Catalog Book Listings | Spring and Summer 2011 Catalog | Patients as Policy Actors


Patients as Policy Actors

Cloth Price: $75.00
Paper Price: $29.95  

Edited and with an introduction by Beatrix Hoffman, Nancy Tomes, Rachel Grob, and Mark Schlesinger
Subject:
Health and Medicine
Cloth
ISBN: 978-0-8135-5050-3
P
aper ISBN: 978-0-8135-5051-0
Pages:
328 pages
Publication Date:
July 2011
Series: Critical Issues in Health and Medicine



Praise:

"This strong volume brings together contributors of different disciplinary and experiential backgrounds, broadening our understanding of how patient voices influence American health care policy.""—Elizabeth Toon, Centre for the History of Science, Technology and Medicine, University of Manchester


Description:

Patients as Policy Actors offers groundbreaking accounts of one of the health field's most important developments of the last fifty years--the rise of more consciously patient-centered care and policymaking. The authors in this volume illustrate, from multiple disciplinary perspectives, the unexpected ways that patients can matter as both agents and objects of health care policy yet nonetheless too often remain silent, silenced, misrepresented, or ignored. The volume concludes with a unique epilogue outlining principles for more effectively integrating patient perspectives into a pluralistic conception of policy-making. With the recent enactment of the Patient Protection and Affordable Care Act, patients' and consumers' roles in American health care require more than ever the careful analysis and attention exemplified by this innovative volume.


About the Editors:

BEATRIX HOFFMAN is an associate professor and chair of the department of history at Northern Illinois Unversity. She is author of The Wages of Sickness: The Politics of Health Insurance in Progressive America. NANCY TOMES is a professor in the history department at Stony Brook University. She is the author of several books,among them, The Gospel of Germs: Men, Women, and the Microbe in American Life. RACHEL GROB is scholar in residence and director of national initiatives at the Center for Patient Partnerships, University of Wisconsin-Madison and healthy advocacy faculty member at Sarah Lawrence College. She is author of Testing Baby: The Transformation of New Born Screening, Parenting, and Policymaking (Rutgers Press, forthcoming). MARK SCHLESINGER is a professor of health policyand a fellow of the Institution for Social and Policy Studies at Yale University and past editor of the Journal of Health Policy, Politics and Law.



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